Clinical trial
Global Registry for COL6-related Dystrophies
NCT04020159 is registered in ClinicalTrials.gov with Newcastle-upon-Tyne Hospitals NHS Trust as lead sponsor.
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Registry record
As filed in ClinicalTrials.gov.
- Title
- Global Registry for COL6-related Dystrophies
- Lead sponsor
- Newcastle-upon-Tyne Hospitals NHS Trust
- Phase
- Observational
- Overall status
- Unknown status
- Start date
- August 1, 2018
- Completion date
- October 31, 2024
- Enrollment
- 1,000 (estimated)
- Sites
- 1
Conditions
As the registry lists them; a condition with its own page is linked.
bethlem myopathy, bethlem myopathy 1, autosomal recessive, bthlm1, ucmd, ullrich congenital muscular dystrophy 1, autosomal dominant, ullrich congenital muscular dystrophy 1, autosomal recessive, ullrich congenital muscular dystrophy 1, digenic, col6a1/col6a2