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Clinical trial

Global Registry for COL6-related Dystrophies

NCT04020159 is registered in ClinicalTrials.gov with Newcastle-upon-Tyne Hospitals NHS Trust as lead sponsor.

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Registry record

As filed in ClinicalTrials.gov.

Title
Global Registry for COL6-related Dystrophies
Lead sponsor
Newcastle-upon-Tyne Hospitals NHS Trust
Phase
Observational
Overall status
Unknown status
Start date
August 1, 2018
Completion date
October 31, 2024
Enrollment
1,000 (estimated)
Sites
1

Conditions

As the registry lists them; a condition with its own page is linked.

bethlem myopathy, bethlem myopathy 1, autosomal recessive, bthlm1, ucmd, ullrich congenital muscular dystrophy 1, autosomal dominant, ullrich congenital muscular dystrophy 1, autosomal recessive, ullrich congenital muscular dystrophy 1, digenic, col6a1/col6a2