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Clinical trial

Registry of Li Fraumeni and Li Fraumeni Like Syndromes That Collects Clinical, Functional, Genetic, Genealogical, Imaging, Surgical, Treatment, Quality of Life Data. Data is Linked to Patients' Biological Samples, When Available

NCT04982744 is registered in ClinicalTrials.gov with Istituto Ortopedico Rizzoli as lead sponsor.

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Registry record

As filed in ClinicalTrials.gov.

Title
Registry of Li Fraumeni and Li Fraumeni Like Syndromes That Collects Clinical, Functional, Genetic, Genealogical, Imaging, Surgical, Treatment, Quality of Life Data. Data is Linked to Patients' Biological Samples, When Available
Lead sponsor
Istituto Ortopedico Rizzoli
Phase
Observational
Overall status
Recruiting
Start date
July 2, 2020
Completion date
July 31, 2045
Enrollment
200 (estimated)
Sites
2

Conditions

As the registry lists them; a condition with its own page is linked.

li-fraumeni syndrome, li-fraumeni-like syndrome