Clinical trial
Registry of Li Fraumeni and Li Fraumeni Like Syndromes That Collects Clinical, Functional, Genetic, Genealogical, Imaging, Surgical, Treatment, Quality of Life Data. Data is Linked to Patients' Biological Samples, When Available
NCT04982744 is registered in ClinicalTrials.gov with Istituto Ortopedico Rizzoli as lead sponsor.
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Registry record
As filed in ClinicalTrials.gov.
- Title
- Registry of Li Fraumeni and Li Fraumeni Like Syndromes That Collects Clinical, Functional, Genetic, Genealogical, Imaging, Surgical, Treatment, Quality of Life Data. Data is Linked to Patients' Biological Samples, When Available
- Lead sponsor
- Istituto Ortopedico Rizzoli
- Phase
- Observational
- Overall status
- Recruiting
- Start date
- July 2, 2020
- Completion date
- July 31, 2045
- Enrollment
- 200 (estimated)
- Sites
- 2
Conditions
As the registry lists them; a condition with its own page is linked.
li-fraumeni syndrome, li-fraumeni-like syndrome