Clinical trial
Marfan Syndrome: the Impact on the Quality of Life, Phenotypic Manifestations on Self-image and Self-management Skills, as an Index of Adaptation to the Disease in Pediatric Patients
NCT05748314 is registered in ClinicalTrials.gov with IRCCS Policlinico S. Donato as lead sponsor.
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Registry record
As filed in ClinicalTrials.gov.
- Title
- Marfan Syndrome: the Impact on the Quality of Life, Phenotypic Manifestations on Self-image and Self-management Skills, as an Index of Adaptation to the Disease in Pediatric Patients
- Lead sponsor
- IRCCS Policlinico S. Donato
- Phase
- Observational
- Overall status
- Active, not recruiting
- Start date
- January 9, 2023
- Completion date
- May 31, 2027
- Enrollment
- 80 (estimated)
- Sites
- 1
Conditions
As the registry lists them; a condition with its own page is linked.
pediatric disorder, rare diseases