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Condition (MeSH)

Ebstein Anomaly

ClinicalTrials.gov lists 4 trials for Ebstein Anomaly or a narrower condition beneath it. National Heart, Lung, and Blood Institute (NHLBI) has the most among industry and government lead sponsors, with 1.

MeSH D004437 Cardiovascular Diseases C14 C16 Listed by Orphanet as a rare disease
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Phase 1 Phase 1 1 Observational Observational 3 Phase 1 Phase 1 1 Observational Observational 3

Trials per phase

4 of the 4 trials are tagged with Ebstein Anomaly itself; the rest are tagged with a narrower condition beneath it.

Get the Ebstein Anomaly report as a PDF

The PDF carries up to 50 rows of each section, where the page shows the first few, with the sources listed. Enter a work email and confirm it from the message we send, and the report follows by email.

When did Ebstein Anomaly trials start? (4)

Shown in this order: most recent first, 1990 onwards. 2026 is partial: trials registered with a 2026 start date so far, not a full year.

Trials over time, by phase

  • Phase 1
  • Observational

Top of scale: 1

2007: 1 trials (Observational 1) 2013: 1 trials (Observational 1) 2016: 1 trials (Phase 1 1) 2021: 1 trials (Observational 1)

Trials registered with a start date in each year, 1990 onward, stacked by phase (complete years only; the current partial year is in the table's notes). The table below lists the same counts, most recent years first.

Trials started per year
Year Trials started
2021 1
2016 1
2013 1
2007 1

No forecast is made for this condition: it averages 0.0 trial starts a year over the five years to September, under the 5 a year the method needs.

Recruitment duration, a model prediction: none of the 4 trials evaluated at the 2026-10-09 snapshot is predicted and still running. Source: ClinicalTrials.gov / AACT (CTTI), public domain.

What phase are Ebstein Anomaly trials in? (2)

Shown in this order: phase order.

Show the trials by phase as a table
Trials by phase
Phase Trials
Phase 1 1
Observational 3

How many Ebstein Anomaly trials are recruiting? (2)

Shown in this order: the order a trial moves through, from not yet recruiting to unknown.

Trials by recruitment status
Status Trials
Recruiting 1
Completed 3

Status as registered on ClinicalTrials.gov. Each trial is counted once.

Which lead sponsors run the most Ebstein Anomaly trials? (1)

Shown in this order: most trials first. Lead sponsors the registry classes as industry, NIH, US federal, other government or network. A hospital or university the registry files as government can appear here. Sponsors it classes as academic or other are shown on the full page, because that class cannot separate an institution from a named investigator.

Lead sponsors
Sponsor Trials
National Heart, Lung, and Blood Institute (NHLBI) 1

Which publications cover Ebstein Anomaly? (9)

Shown in this order: major-topic papers first, then newest, then most linked to trials.

Prevalence (66)

Shown in this order: jurisdiction, then disease name. Orphanet observation for the mapped ORPHA concept; the mapping relation column says whether that concept is exactly this condition or broader or narrower.

Prevalence
Orphanet disease Type Class Geography Jurisdiction Mapping relation
Ebstein malformation of the tricuspid valve Prevalence at birth 1-9 / 100 000 United Kingdom GB Exact
Ebstein malformation of the tricuspid valve Prevalence at birth 1-9 / 100 000 United Kingdom GB Exact
Ebstein malformation of the tricuspid valve Prevalence at birth 1-9 / 100 000 United Kingdom GB Unspecified
Ebstein malformation of the tricuspid valve Prevalence at birth 1-9 / 100 000 United States US Unspecified
Ebstein malformation of the tricuspid valve Prevalence at birth 1-9 / 100 000 United States US Exact

Rare-disease identity (2)

Shown in this order: exact, broader, narrower, other.

Rare-disease identity
Orphanet disease ORPHA code Relation Source
Ebstein malformation of the tricuspid valve 1880 Exact Orphadata Science knowledge files, Product 1
Ebstein malformation of the tricuspid valve 1880 Exact Orphanet Rare Disease Ontology (ORDO)

Not on this page

Not measured: delivery record.

Checked, with nothing recorded for this condition: serious adverse events in this condition's trials and sub-conditions in mesh.

Not computed for conditions with fewer than 10 trials: drugs tested.

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