Condition (MeSH)
Heterotaxy Syndrome
ClinicalTrials.gov lists 5 trials for Heterotaxy Syndrome or a narrower condition beneath it.
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Trials per phase
5 of the 5 trials are tagged with Heterotaxy Syndrome itself; the rest are tagged with a narrower condition beneath it.
When did Heterotaxy Syndrome trials start? (5)
Shown in this order: most recent first, 1990 onwards. 2026 is partial: trials registered with a 2026 start date so far, not a full year.
Trials over time, by phase
- Phase 1
- Observational
Top of scale: 1
Trials registered with a start date in each year, 1990 onward, stacked by phase (complete years only; the current partial year is in the table's notes). The table below lists the same counts, most recent years first.
| Year | Trials started |
|---|---|
| 2014 | 1 |
| 2013 | 1 |
| 2012 | 1 |
| 2009 | 1 |
| 1990 | 1 |
No forecast is made for this condition: it averages 0.0 trial starts a year over the five years to September, under the 5 a year the method needs.
Recruitment duration, a model prediction: none of the 5 trials evaluated at the 2026-10-09 snapshot is predicted and still running. Source: ClinicalTrials.gov / AACT (CTTI), public domain.
What phase are Heterotaxy Syndrome trials in? (2)
Shown in this order: phase order.
Show the trials by phase as a table
| Phase | Trials |
|---|---|
| Phase 1 | 1 |
| Observational | 4 |
How many Heterotaxy Syndrome trials are recruiting? (3)
Shown in this order: the order a trial moves through, from not yet recruiting to unknown.
| Status | Trials |
|---|---|
| Recruiting | 1 |
| Completed | 3 |
| Terminated | 1 |
Status as registered on ClinicalTrials.gov. Each trial is counted once.
Which publications cover Heterotaxy Syndrome? (9)
Shown in this order: major-topic papers first, then newest, then most linked to trials.
| Publication | Journal | Year | Major topic |
|---|---|---|---|
| Thoraco-Abdominal Abnormalities in Bardet-Biedl Syndrome: Situs Inversus and Heterotaxy. | The Journal of pediatrics | 2019 | Yes |
| Imbalanced mitochondrial function provokes heterotaxy via aberrant ciliogenesis. | The Journal of clinical investigation | 2019 | Yes |
| Immunogenicity, safety and reactogenicity of the pneumococcal non-typeable Haemophilus influenzae protein D conjugate vaccine (PHiD-CV) in 2-17-year-old children with asplenia or splenic dysfunction: A phase 3 study. | Vaccine | 2017 | Yes |
| High prevalence of respiratory ciliary dysfunction in congenital heart disease patients with heterotaxy. | Circulation | 2012 | Yes |
| Endoscopic intragastric balloon: a bridge toward definitive bariatric surgical management of a morbidly obese patient with situs ambiguous and midgut malrotation (with videos). | Gastrointestinal endoscopy | 2012 | Yes |
Showing 5 of 9 publications.
Prevalence (4)
Shown in this order: jurisdiction, then disease name. Orphanet observation for the mapped ORPHA concept; the mapping relation column says whether that concept is exactly this condition or broader or narrower.
| Orphanet disease | Type | Class | Geography | Jurisdiction | Mapping relation |
|---|---|---|---|---|---|
| Visceral heterotaxy | Prevalence at birth | 1-5 / 10 000 | United States | US | Exact |
| Visceral heterotaxy | Prevalence at birth | 1-5 / 10 000 | United States | US | Exact |
| Visceral heterotaxy | Point prevalence | 1-9 / 100 000 | Europe | Not stated | Exact |
| Visceral heterotaxy | Point prevalence | 1-9 / 100 000 | Europe | Not stated | Exact |
Rare-disease identity (2)
Shown in this order: exact, broader, narrower, other.
| Orphanet disease | ORPHA code | Relation | Source |
|---|---|---|---|
| Visceral heterotaxy | 450 | Exact | Orphadata Science knowledge files, Product 1 |
| Visceral heterotaxy | 450 | Exact | Orphanet Rare Disease Ontology (ORDO) |
Not on this page
Not measured: delivery record.
Checked, with nothing recorded for this condition: lead sponsors, serious adverse events in this condition's trials, and sub-conditions in mesh.
Not computed for conditions with fewer than 10 trials: drugs tested.