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Clinical trial

National Registry of Myotonic Dystrophy and Facioscapulohumeral Muscular Dystrophy Patients and Family Members

NCT00082108 is registered in ClinicalTrials.gov with University of Rochester as lead sponsor.

NCT NCT00082108
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Registry record

As filed in ClinicalTrials.gov.

Title
National Registry of Myotonic Dystrophy and Facioscapulohumeral Muscular Dystrophy Patients and Family Members
Lead sponsor
University of Rochester
Phase
Observational
Overall status
Recruiting
Start date
September 30, 2000
Completion date
June 30, 2028
Enrollment
3,000 (estimated)
Sites
1

Conditions

As the registry lists them; a condition with its own page is linked.

congenital myotonic dystrophy, facioscapulohumeral muscular dystrophy, muscular dystrophy, myotonic dystrophy, myotonic dystrophy type 1, myotonic dystrophy type 2, myotonic muscular dystrophy, promm (proximal myotonic myopathy), steinert's disease