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Clinical trial

An Observational Disease and Clinical Outcomes Registry of Patients With Lysosomal Acid Lipase (LAL) Deficiency

NCT01633489 is registered in ClinicalTrials.gov with Alexion Pharmaceuticals, Inc. as lead sponsor.

NCT NCT01633489
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Registry record

As filed in ClinicalTrials.gov.

Title
An Observational Disease and Clinical Outcomes Registry of Patients With Lysosomal Acid Lipase (LAL) Deficiency
Lead sponsor
Alexion Pharmaceuticals, Inc.
Phase
Observational
Overall status
Recruiting
Start date
May 30, 2013
Completion date
August 30, 2029
Enrollment
300 (estimated)
Sites
104

Conditions

As the registry lists them; a condition with its own page is linked.

acid cholesteryl ester hydrolase deficiency, type 2, acid lipase deficiency, cholesterol ester storage disease, lal-deficiency, lipa deficiency, lysosomal acid lipase deficiency, wolman disease