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Clinical trial

Prospective Psychometric Evaluation Study of a Patient-reported Outcomes (PRO) Instrument for Congenital Thrombotic Thrombocytopenic Purpura (cTTP, Upshaw-Schulman Syndrome [USS], Hereditary Thrombotic Thrombocytopenic Purpura [hTTP]

NCT03519672 is registered in ClinicalTrials.gov with Baxalta now part of Shire as lead sponsor.

NCT NCT03519672
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Registry record

As filed in ClinicalTrials.gov.

Title
Prospective Psychometric Evaluation Study of a Patient-reported Outcomes (PRO) Instrument for Congenital Thrombotic Thrombocytopenic Purpura (cTTP, Upshaw-Schulman Syndrome [USS], Hereditary Thrombotic Thrombocytopenic Purpura [hTTP]
Lead sponsor
Baxalta now part of Shire
Phase
Observational
Overall status
Completed
Start date
July 12, 2018
Completion date
April 8, 2019
Enrollment
41 (actual)
Sites
4

Conditions

As the registry lists them; a condition with its own page is linked.

congenital thrombotic thrombocytopenic purpura