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Clinical trial

Natural History and Long Term Clinical Assessments of All Forms of Neuronal Ceroid Lipofuscinoses - Capturing Key Symptoms and Disease Progression as Part of the Independent, International NCL DEM-CHILD Patient Database

NCT04613089 is registered in ClinicalTrials.gov with Universitätsklinikum Hamburg-Eppendorf as lead sponsor.

NCT NCT04613089
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Registry record

As filed in ClinicalTrials.gov.

Title
Natural History and Long Term Clinical Assessments of All Forms of Neuronal Ceroid Lipofuscinoses - Capturing Key Symptoms and Disease Progression as Part of the Independent, International NCL DEM-CHILD Patient Database
Lead sponsor
Universitätsklinikum Hamburg-Eppendorf
Phase
Observational
Overall status
Recruiting
Start date
April 8, 2020
Completion date
April 8, 2050
Enrollment
500 (estimated)
Sites
1

Conditions

As the registry lists them; a condition with its own page is linked.

batten disease, cln1 disease, cln10 disease, cln11 disease, cln12 disease, cln13 disease, cln14 disease, cln2 disease, cln3 disease, cln4 disease, cln5 disease, cln6 disease, cln7 disease, cln8 disease, neuronal ceroid lipofuscinosis