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Clinical trial

Development and Validation of a Standardized Assessment Instrument for Health-related Quality of Life (HrQoL) in Children and Adolescents With Pompe Disease (PD): a Joint Effort of Patients, Caregivers and Metabolic Experts

NCT04724213 is registered in ClinicalTrials.gov with University Children's Hospital, Zurich as lead sponsor.

NCT NCT04724213
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Registry record

As filed in ClinicalTrials.gov.

Title
Development and Validation of a Standardized Assessment Instrument for Health-related Quality of Life (HrQoL) in Children and Adolescents With Pompe Disease (PD): a Joint Effort of Patients, Caregivers and Metabolic Experts
Lead sponsor
University Children's Hospital, Zurich
Phase
Not applicable
Overall status
Completed
Start date
July 1, 2021
Completion date
December 1, 2023
Enrollment
101 (actual)
Sites
1

Conditions

As the registry lists them; a condition with its own page is linked.

pompe disease