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Clinical trial

TIRCON International NBIA (Neurodegeneration Associated With Brain Iron Accumulation) Patient Registry and Natural History Study

NCT05522374 is registered in ClinicalTrials.gov with LMU Klinikum as lead sponsor.

NCT NCT05522374
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Registry record

As filed in ClinicalTrials.gov.

Title
TIRCON International NBIA (Neurodegeneration Associated With Brain Iron Accumulation) Patient Registry and Natural History Study
Lead sponsor
LMU Klinikum
Phase
Observational
Overall status
Recruiting
Start date
June 14, 2012
Completion date
December 31, 2040
Enrollment
2,000 (estimated)
Sites
9

Conditions

As the registry lists them; a condition with its own page is linked.

aceruloplasminemia, beta-propeller protein-associated neurodegeneration (bpan), coasy protein-associated neurodegeneration (copan), fatty acid hydroxylase-associated neurodegeneration (fahn), kufor rakeb syndrome, mitochondrial membrane protein associated neurodegeneration (mpan), neurodegeneration with brain iron accumulation (nbia), neuroferritinopathy, pantothenate kinase-associated neurodegeneration (pkan), pla2g6-associated neurodegeneration (plan), woodhouse sakati syndrome