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Clinical trial

Development of a Patient-reported Outcome to Measure the Health-related Quality of Life of Children, Adolescents and Young Adults With Cystinosis.

NCT05959668 is registered in ClinicalTrials.gov with Cystinose Stiftung as lead sponsor.

NCT NCT05959668
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Registry record

As filed in ClinicalTrials.gov.

Title
Development of a Patient-reported Outcome to Measure the Health-related Quality of Life of Children, Adolescents and Young Adults With Cystinosis.
Lead sponsor
Cystinose Stiftung
Phase
Observational
Overall status
Recruiting
Start date
May 1, 2022
Completion date
May 31, 2025
Enrollment
300 (estimated)
Sites
1

Conditions

As the registry lists them; a condition with its own page is linked.

cystinosis