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Clinical trial

Biobanks, Registries and National Health Records: Modelling a Networking Strategy to Foster Research and Development and to Support the Secondary Use of Data and Samples of Rare Disease Patients: Implementing Dynamic Consent for Rare Disease Patients

NCT06656247 is registered in ClinicalTrials.gov with Istituto Ortopedico Rizzoli as lead sponsor.

NCT NCT06656247
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Registry record

As filed in ClinicalTrials.gov.

Title
Biobanks, Registries and National Health Records: Modelling a Networking Strategy to Foster Research and Development and to Support the Secondary Use of Data and Samples of Rare Disease Patients: Implementing Dynamic Consent for Rare Disease Patients
Lead sponsor
Istituto Ortopedico Rizzoli
Phase
Observational
Overall status
Not yet recruiting
Start date
June 30, 2026
Completion date
February 28, 2027
Enrollment
50 (estimated)
Sites
Not reported

Conditions

As the registry lists them; a condition with its own page is linked.

rare disorders