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Clinical trial

Rare Glycogen Storage Diseases Natural History Study

NCT06795152 is registered in ClinicalTrials.gov with Duke University as lead sponsor.

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Registry record

As filed in ClinicalTrials.gov.

Title
Rare Glycogen Storage Diseases Natural History Study
Lead sponsor
Duke University
Phase
Observational
Overall status
Recruiting
Start date
December 23, 2024
Completion date
December 31, 2034
Enrollment
200 (estimated)
Sites
1

Conditions

As the registry lists them; a condition with its own page is linked.

danon disease, glycogen storage disease, gsd type 0a, gsd type 0b, gsd vii, gsd x, gsd xii, gsd xiii, gsd xv, pgbm2, polyglucosan body myopathy type 1, polyglucosan body myopathy type 2, prkag2, rbck1 deficiency, tarui disease