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Clinical trial

BetterLife FSHD: A Patient-driven Health and Research Platform

NCT07409142 is registered in ClinicalTrials.gov with FSHD Society as lead sponsor.

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Registry record

As filed in ClinicalTrials.gov.

Title
BetterLife FSHD: A Patient-driven Health and Research Platform
Lead sponsor
FSHD Society
Phase
Observational
Overall status
Recruiting
Start date
August 2, 2024
Completion date
January 31, 2060
Enrollment
5,000 (estimated)
Sites
1

Conditions

As the registry lists them; a condition with its own page is linked.

facioscapulohumeral muscular dystrophy, facioscapulohumeral muscular dystrophy (fshd), facioscapulohumeral muscular dystrophy 1, facioscapulohumeral muscular dystrophy 2, fsh, fsh muscular dystrophy, fshd, fshd - facioscapulohumeral muscular dystrophy, fshd1, fshd2, muscular dystrophy, facioscapulohumeral