Condition (MeSH)
Porphyria, Erythropoietic
ClinicalTrials.gov lists 2 trials for Porphyria, Erythropoietic or a narrower condition beneath it.
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Trials per phase
2 of the 2 trials are tagged with Porphyria, Erythropoietic itself; the rest are tagged with a narrower condition beneath it.
When did Porphyria, Erythropoietic trials start? (2)
Shown in this order: most recent first, 1990 onwards. 2026 is partial: trials registered with a 2026 start date so far, not a full year.
| Year | Trials started |
|---|---|
| 2026 (partial year) | 1 |
| 1999 | 1 |
No forecast is made for this condition: it averages 0.2 trial starts a year over the five years to September, under the 5 a year the method needs.
Recruitment duration, a model prediction: 1 trial still running at the 2026-10-09 snapshot, fewer than the 5 needed for a median. Source: ClinicalTrials.gov / AACT (CTTI), public domain.
What phase are Porphyria, Erythropoietic trials in? (2)
Shown in this order: phase order.
Show the trials by phase as a table
| Phase | Trials |
|---|---|
| Phase 1/2 | 1 |
| Observational | 1 |
How many Porphyria, Erythropoietic trials are recruiting? (2)
Shown in this order: the order a trial moves through, from not yet recruiting to unknown.
| Status | Trials |
|---|---|
| Recruiting | 1 |
| Completed | 1 |
Status as registered on ClinicalTrials.gov. Each trial is counted once.
Which lead sponsors run the most Porphyria, Erythropoietic trials? (2)
Shown in this order: most trials first. Lead sponsors the registry classes as industry, NIH, US federal, other government or network. A hospital or university the registry files as government can appear here. Sponsors it classes as academic or other are shown on the full page, because that class cannot separate an institution from a named investigator.
| Sponsor | Trials |
|---|---|
| Atlas Molecular Pharma | 1 |
| National Center for Research Resources (NCRR) | 1 |
Prevalence (9)
Shown in this order: jurisdiction, then disease name. Orphanet observation for the mapped ORPHA concept; the mapping relation column says whether that concept is exactly this condition or broader or narrower.
| Orphanet disease | Type | Class | Geography | Jurisdiction | Mapping relation |
|---|---|---|---|---|---|
| Congenital erythropoietic porphyria | Annual incidence | <1 / 1 000 000 | Europe | Not stated | Exact |
| Congenital erythropoietic porphyria | Annual incidence | <1 / 1 000 000 | Europe | Not stated | Exact |
| Congenital erythropoietic porphyria | Point prevalence | <1 / 1 000 000 | Worldwide | Not stated | Unspecified |
| Congenital erythropoietic porphyria | Point prevalence | <1 / 1 000 000 | Worldwide | Not stated | Exact |
| Congenital erythropoietic porphyria | Cases families | Worldwide | Not stated | Exact |
Showing 5 of 9 prevalence observations.
Rare-disease identity (2)
Shown in this order: exact, broader, narrower, other.
| Orphanet disease | ORPHA code | Relation | Source |
|---|---|---|---|
| Congenital erythropoietic porphyria | 79277 | Exact | Orphadata Science knowledge files, Product 1 |
| Congenital erythropoietic porphyria | 79277 | Exact | Orphanet Rare Disease Ontology (ORDO) |
Not on this page
Not measured: delivery record.
Checked, with nothing recorded for this condition: serious adverse events in this condition's trials, publications, and sub-conditions in mesh.
Not computed for conditions with fewer than 10 trials: drugs tested.