Condition (MeSH)
Susac Syndrome
ClinicalTrials.gov lists 4 trials for Susac Syndrome or a narrower condition beneath it.
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Rows recorded per section
3 sections measured, none recorded · 1 not measured yet · 1 not computed
4 of the 4 trials are tagged with Susac Syndrome itself; the rest are tagged with a narrower condition beneath it.
When did Susac Syndrome trials start? (4)
Shown in this order: most recent first, 1990 onwards. 2026 is partial: trials registered with a 2026 start date so far, not a full year.
Trials over time, by phase
- Observational
Top of scale: 1
Trials registered with a start date in each year, 1990 onward, stacked by phase (complete years only; the current partial year is in the table's notes). The table below lists the same counts, most recent years first.
| Year | Trials started |
|---|---|
| 2025 | 1 |
| 2023 | 1 |
| 2011 | 1 |
| 2010 | 1 |
No forecast is made for this condition: it averages 0.4 trial starts a year over the five years to September, under the 5 a year the method needs.
Recruitment duration, a model prediction: none of the 4 trials evaluated at the 2026-10-09 snapshot is predicted and still running. Source: ClinicalTrials.gov / AACT (CTTI), public domain.
What phase are Susac Syndrome trials in? (1)
Shown in this order: phase order.
| Phase | Trials |
|---|---|
| Observational | 4 |
How many Susac Syndrome trials are recruiting? (3)
Shown in this order: the order a trial moves through, from not yet recruiting to unknown.
| Status | Trials |
|---|---|
| Recruiting | 1 |
| Completed | 1 |
| Unknown status | 2 |
Status as registered on ClinicalTrials.gov. Each trial is counted once.
Which publications cover Susac Syndrome? (16)
Shown in this order: major-topic papers first, then newest, then most linked to trials.
| Publication | Journal | Year | Major topic |
|---|---|---|---|
| Immunosuppressive agents or intravenous immunoglobulin in addition to glucocorticoids in the treatment of Susac syndrome: a French national cohort study. | The Lancet. Rheumatology | 2025 | Yes |
| Brain microstructural damage through serial diffusion tensor imaging and outcomes in Susac syndrome: A prospective cohort study. | European journal of neurology | 2025 | Yes |
| Risk factors for severe hearing loss in Susac syndrome: A national cohort study. | European journal of neurology | 2024 | Yes |
| Integrated physiotherapy approach for susac syndrome: A comprehensive case study. | Journal of bodywork and movement therapies | 2024 | Yes |
| Susac syndrome: neurological update (clinical features, long-term observational follow-up and management of sixteen patients). | Journal of neurology | 2023 | Yes |
Showing 5 of 16 publications.
Prevalence (6)
Shown in this order: jurisdiction, then disease name. Orphanet observation for the mapped ORPHA concept; the mapping relation column says whether that concept is exactly this condition or broader or narrower.
| Orphanet disease | Type | Class | Geography | Jurisdiction | Mapping relation |
|---|---|---|---|---|---|
| Susac syndrome | Point prevalence | Unknown | Worldwide | Not stated | Exact |
| Susac syndrome | Cases families | Worldwide | Not stated | Exact | |
| Susac syndrome | Cases families | Worldwide | Not stated | Exact | |
| Susac syndrome | Point prevalence | Unknown | Worldwide | Not stated | Unspecified |
| Susac syndrome | Cases families | Worldwide | Not stated | Unspecified |
Showing 5 of 6 prevalence observations.
Rare-disease identity (2)
Shown in this order: exact, broader, narrower, other.
| Orphanet disease | ORPHA code | Relation | Source |
|---|---|---|---|
| Susac syndrome | 838 | Exact | Orphadata Science knowledge files, Product 1 |
| Susac syndrome | 838 | Exact | Orphanet Rare Disease Ontology (ORDO) |
Not on this page
Not measured: delivery record.
Checked, with nothing recorded for this condition: lead sponsors, serious adverse events in this condition's trials, and sub-conditions in mesh.
Not computed for conditions with fewer than 10 trials: drugs tested.