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Condition (MeSH)

Hyaline Fibromatosis Syndrome

ClinicalTrials.gov lists 3 trials for Hyaline Fibromatosis Syndrome or a narrower condition beneath it.

MeSH D057770 Congenital / Hereditary / Neonatal C16 C17
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Phase 1/2 Phase 1/2 1 Observational Observational 2 Phase 1/2 Phase 1/2 1 Observational Observational 2

Trials per phase

3 of the 3 trials are tagged with Hyaline Fibromatosis Syndrome itself; the rest are tagged with a narrower condition beneath it.

Get the Hyaline Fibromatosis Syndrome report as a PDF

The PDF carries up to 50 rows of each section, where the page shows the first few, with the sources listed. Enter a work email and confirm it from the message we send, and the report follows by email.

When did Hyaline Fibromatosis Syndrome trials start? (3)

Shown in this order: most recent first, 1990 onwards. 2026 is partial: trials registered with a 2026 start date so far, not a full year.

Trials over time, by phase

  • Phase 1/2
  • Observational

Top of scale: 1

2010: 1 trials (Phase 1/2 1) 2018: 1 trials (Observational 1) 2025: 1 trials (Observational 1)

Trials registered with a start date in each year, 1990 onward, stacked by phase (complete years only; the current partial year is in the table's notes). The table below lists the same counts, most recent years first.

Trials started per year
Year Trials started
2025 1
2018 1
2010 1

No forecast is made for this condition: it averages 0.2 trial starts a year over the five years to September, under the 5 a year the method needs.

Recruitment duration, a model prediction: none of the 3 trials evaluated at the 2026-10-09 snapshot is predicted and still running. Source: ClinicalTrials.gov / AACT (CTTI), public domain.

What phase are Hyaline Fibromatosis Syndrome trials in? (2)

Shown in this order: phase order.

Show the trials by phase as a table
Trials by phase
Phase Trials
Phase 1/2 1
Observational 2

How many Hyaline Fibromatosis Syndrome trials are recruiting? (3)

Shown in this order: the order a trial moves through, from not yet recruiting to unknown.

Trials by recruitment status
Status Trials
Not yet recruiting 1
Completed 1
Withdrawn 1

Status as registered on ClinicalTrials.gov. Each trial is counted once.

Which lead sponsors run the most Hyaline Fibromatosis Syndrome trials? (2)

Shown in this order: most trials first. Lead sponsors the registry classes as industry, NIH, US federal, other government or network. A hospital or university the registry files as government can appear here. Sponsors it classes as academic or other are shown on the full page, because that class cannot separate an institution from a named investigator.

Lead sponsors
Sponsor Trials
CENTOGENE GmbH Rostock 1
Nanometics (d.b.a. PHD Biosciences) 1

Prevalence (4)

Shown in this order: jurisdiction, then disease name. Orphanet observation for the mapped ORPHA concept; the mapping relation column says whether that concept is exactly this condition or broader or narrower.

Prevalence
Orphanet disease Type Class Geography Jurisdiction Mapping relation
Juvenile hyaline fibromatosis Point prevalence <1 / 1 000 000 Worldwide Not stated Exact
Juvenile hyaline fibromatosis Cases families Worldwide Not stated Exact
Juvenile hyaline fibromatosis Cases families Worldwide Not stated Exact
Juvenile hyaline fibromatosis Point prevalence <1 / 1 000 000 Worldwide Not stated Exact

Rare-disease identity (2)

Shown in this order: exact, broader, narrower, other.

Rare-disease identity
Orphanet disease ORPHA code Relation Source
Juvenile hyaline fibromatosis 2028 Exact Orphanet Rare Disease Ontology (ORDO)
Juvenile hyaline fibromatosis 2028 Exact Orphadata Science knowledge files, Product 1

Not on this page

Not measured: delivery record.

Checked, with nothing recorded for this condition: serious adverse events in this condition's trials, publications, and sub-conditions in mesh.

Not computed for conditions with fewer than 10 trials: drugs tested.

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