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Clinical trial

National Registry of Genetically Triggered Thoracic Aortic Aneurysms and Cardiovascular Conditions

NCT01322165 is registered in ClinicalTrials.gov with National Heart, Lung, and Blood Institute (NHLBI) as lead sponsor.

NCT NCT01322165
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Registry record

As filed in ClinicalTrials.gov.

Title
National Registry of Genetically Triggered Thoracic Aortic Aneurysms and Cardiovascular Conditions
Lead sponsor
National Heart, Lung, and Blood Institute (NHLBI)
Phase
Observational
Overall status
Completed
Start date
November 30, 2007
Completion date
September 30, 2016
Enrollment
3,706 (actual)
Sites
7

Conditions

As the registry lists them; a condition with its own page is linked.

bicuspid aortic valve with coarctation, bicuspid aortic valve with family history, bicuspid aortic valve without known family history, ehlers-danlos syndrome, familial thoracic aortic aneurysm and dissections, fbn1, tgfbr1, tgfbr2, acta2 or myh11 genetic mutation, loeys-dietz syndrome, marfan syndrome, other aneur/diss of thoracic aorta not due to trauma, <50yo, other congenital heart disease, shprintzen-goldberg syndrome, turner syndrome