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Clinical trial

Registry of Ehlers-Danlos Syndrome That Collects Clinical, Functional, Genetic, Genealogical, Imaging, Surgical, Treatment, Quality of Life Data. Data Are Linked to Patients' Biological Samples, When Available

NCT04133272 is registered in ClinicalTrials.gov with Luca Sangiorgi as lead sponsor.

NCT NCT04133272
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Registry record

As filed in ClinicalTrials.gov.

Title
Registry of Ehlers-Danlos Syndrome That Collects Clinical, Functional, Genetic, Genealogical, Imaging, Surgical, Treatment, Quality of Life Data. Data Are Linked to Patients' Biological Samples, When Available
Lead sponsor
Luca Sangiorgi
Phase
Observational
Overall status
Recruiting
Start date
June 30, 2014
Completion date
January 31, 2033
Enrollment
3,000 (estimated)
Sites
1

Conditions

As the registry lists them; a condition with its own page is linked.

ehlers-danlos syndrome