Clinical trial
Registry of Ollier Disease and Maffucci Syndrome That Collects Clinical, Functional, Genetic, Genealogical, Imaging, Surgical, Treatment, Quality of Life Data. Data is Linked to Patients' Biological Samples, When Available
NCT04134572 is registered in ClinicalTrials.gov with Luca Sangiorgi as lead sponsor.
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Registry record
As filed in ClinicalTrials.gov.
- Title
- Registry of Ollier Disease and Maffucci Syndrome That Collects Clinical, Functional, Genetic, Genealogical, Imaging, Surgical, Treatment, Quality of Life Data. Data is Linked to Patients' Biological Samples, When Available
- Lead sponsor
- Luca Sangiorgi
- Phase
- Observational
- Overall status
- Recruiting
- Start date
- January 16, 2017
- Completion date
- January 31, 2032
- Enrollment
- 400 (estimated)
- Sites
- 1
Conditions
As the registry lists them; a condition with its own page is linked.
maffucci syndrome, ollier disease