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Clinical trial

Multicentre, Ambispective, Observational, Real Life Study to Assess the Quality of Life Effectiveness of Extended Release (ER) Oral Cysteamine Therapy (Procysbi) in Belgian Patients Suffering From Nephropathic Cystinosis

NCT04246060 is registered in ClinicalTrials.gov with Chiesi SA/NV as lead sponsor.

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Registry record

As filed in ClinicalTrials.gov.

Title
Multicentre, Ambispective, Observational, Real Life Study to Assess the Quality of Life Effectiveness of Extended Release (ER) Oral Cysteamine Therapy (Procysbi) in Belgian Patients Suffering From Nephropathic Cystinosis
Lead sponsor
Chiesi SA/NV
Phase
Observational
Overall status
Unknown status
Start date
July 31, 2020
Completion date
July 1, 2026
Enrollment
31 (estimated)
Sites
7

Conditions

As the registry lists them; a condition with its own page is linked.

nephropathic cystinosis