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Clinical trial

Identification and Validation of Relevant Patient and Observer Reported Outcome Measurements in Inborn Errors of Metabolism

NCT04248062 is registered in ClinicalTrials.gov with University Children's Hospital, Zurich as lead sponsor.

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Registry record

As filed in ClinicalTrials.gov.

Title
Identification and Validation of Relevant Patient and Observer Reported Outcome Measurements in Inborn Errors of Metabolism
Lead sponsor
University Children's Hospital, Zurich
Phase
Observational
Overall status
Completed
Start date
August 1, 2019
Completion date
October 16, 2020
Enrollment
69 (actual)
Sites
1

Conditions

As the registry lists them; a condition with its own page is linked.

aminoacidopathy, inborn errors of metabolism, maple syrup urine disease, methylmalonicacidemia, otc deficiency, patient reported outcome measurements, phenylketonurias, urea cycle disorder