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Clinical trial

A Systems-based Approach to Patient-focused Rare Disease Research and Product Development

NCT04628364 is registered in ClinicalTrials.gov with National Organization for Rare Disorders as lead sponsor.

NCT NCT04628364
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Registry record

As filed in ClinicalTrials.gov.

Title
A Systems-based Approach to Patient-focused Rare Disease Research and Product Development
Lead sponsor
National Organization for Rare Disorders
Phase
Observational
Overall status
Completed
Start date
October 1, 2020
Completion date
March 30, 2025
Enrollment
21 (actual)
Sites
1

Conditions

As the registry lists them; a condition with its own page is linked.

metachromatic leukodystrophy