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Clinical trial

Needs Assessment for Individuals and Families Affected by Dyskeratosis Congenita (DC) and Related Telomere Biology Disorders (TBD)

NCT04959188 is registered in ClinicalTrials.gov with National Cancer Institute (NCI) as lead sponsor.

NCT NCT04959188
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Registry record

As filed in ClinicalTrials.gov.

Title
Needs Assessment for Individuals and Families Affected by Dyskeratosis Congenita (DC) and Related Telomere Biology Disorders (TBD)
Lead sponsor
National Cancer Institute (NCI)
Phase
Observational
Overall status
Completed
Start date
September 9, 2021
Completion date
July 5, 2023
Enrollment
53 (actual)
Sites
1

Conditions

As the registry lists them; a condition with its own page is linked.

dyskeratosis congenita, telomere biology disorders