Skip to content
Pharma Observatory a Scientist.com platform

Clinical trial

Universal Rare Gene Study: A Registry and Natural History Study of Retinal Dystrophies Associated With Rare Disease-Causing Genetic Variants

NCT05589714 is registered in ClinicalTrials.gov with Jaeb Center for Health Research as lead sponsor.

NCT NCT05589714
Email me this page as a PDF

Search trials, sites, companies and investigators, and follow each one to the others. Individual plan, $249/seat/mo. Card required.

Get the NCT05589714 report as a PDF

The PDF carries up to 50 rows of each section, where the page shows the first few, with the sources listed. Enter a work email and confirm it from the message we send, and the report follows by email.

Registry record

As filed in ClinicalTrials.gov.

Title
Universal Rare Gene Study: A Registry and Natural History Study of Retinal Dystrophies Associated With Rare Disease-Causing Genetic Variants
Lead sponsor
Jaeb Center for Health Research
Phase
Observational
Overall status
Recruiting
Start date
May 11, 2023
Completion date
December 15, 2030
Enrollment
1,500 (estimated)
Sites
36

Conditions

As the registry lists them; a condition with its own page is linked.

inherited retinal degeneration, retinitis pigmentosa