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Clinical trial

National Cohort for Evaluation of the Burden of Rare Skin Diseases

NCT05954416 is registered in ClinicalTrials.gov with Institut National de la Santé Et de la Recherche Médicale, France as lead sponsor.

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Registry record

As filed in ClinicalTrials.gov.

Title
National Cohort for Evaluation of the Burden of Rare Skin Diseases
Lead sponsor
Institut National de la Santé Et de la Recherche Médicale, France
Phase
Observational
Overall status
Recruiting
Start date
March 7, 2018
Completion date
March 7, 2027
Enrollment
900 (estimated)
Sites
15

Conditions

As the registry lists them; a condition with its own page is linked.

albinism, ectodermal dysplasia, ichthyosis, incontinentia pigmenti, inherited epidermolysis bullosa, mucous membrane pemphigoid, neurofibromatosis type 1, palmoplantar keratoderma, pemphigus