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Clinical trial

Dragonfly Study: An International, Prospective, Longitudinal, Observational Natural History Study of Children and Adults Living With CTNNB1 Neurodevelopmental Syndrome

NCT07167732 is registered in ClinicalTrials.gov with University Medical Centre Ljubljana as lead sponsor.

NCT NCT07167732
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Registry record

As filed in ClinicalTrials.gov.

Title
Dragonfly Study: An International, Prospective, Longitudinal, Observational Natural History Study of Children and Adults Living With CTNNB1 Neurodevelopmental Syndrome
Lead sponsor
University Medical Centre Ljubljana
Phase
Observational
Overall status
Recruiting
Start date
June 14, 2024
Completion date
January 31, 2030
Enrollment
250 (estimated)
Sites
2

Conditions

As the registry lists them; a condition with its own page is linked.

ctnnb1 neurodevelopmental syndrome