Condition (MeSH)
Sturge-Weber Syndrome
ClinicalTrials.gov lists 17 trials for Sturge-Weber Syndrome or a narrower condition beneath it. Qlaris Bio, Inc. has the most among industry and government lead sponsors, with 2.
Search trials, drugs, companies and investigators, and follow each one to the others. Individual plan, $249/seat/mo. Card required.
Trials per phase
17 of the 17 trials are tagged with Sturge-Weber Syndrome itself; the rest are tagged with a narrower condition beneath it.
When did Sturge-Weber Syndrome trials start? (12)
Shown in this order: most recent first, 1990 onwards. 2026 is partial: trials registered with a 2026 start date so far, not a full year.
Trials over time, by phase
- Phase 1
- Phase 1/2
- Phase 2
- Phase 2/3
- Phase 4
- Not applicable
- Observational
Top of scale: 3
Trials registered with a start date in each year, 1990 onward, stacked by phase (complete years only; the current partial year is in the table's notes). The table below lists the same counts, most recent years first.
| Year | Trials started |
|---|---|
| 2026 (partial year) | 1 |
| 2022 | 1 |
| 2021 | 2 |
| 2020 | 2 |
| 2019 | 1 |
| 2018 | 1 |
| 2017 | 1 |
| 2014 | 2 |
| 2012 | 1 |
| 2010 | 3 |
Showing 10 of 12 earlier years.
No forecast is made for this condition: it averages 0.6 trial starts a year over the five years to September, under the 5 a year the method needs.
Recruitment duration, a model prediction: none of the 17 trials evaluated at the 2026-10-09 snapshot is predicted and still running. Source: ClinicalTrials.gov / AACT (CTTI), public domain.
What phase are Sturge-Weber Syndrome trials in? (7)
Shown in this order: phase order.
Show the trials by phase as a table
| Phase | Trials |
|---|---|
| Phase 1 | 2 |
| Phase 1/2 | 1 |
| Phase 2 | 4 |
| Phase 2/3 | 1 |
| Phase 4 | 1 |
| Not applicable | 3 |
| Observational | 5 |
How many Sturge-Weber Syndrome trials are recruiting? (5)
Shown in this order: the order a trial moves through, from not yet recruiting to unknown.
| Status | Trials |
|---|---|
| Not yet recruiting | 1 |
| Active, not recruiting | 2 |
| Completed | 11 |
| Terminated | 1 |
| Withdrawn | 2 |
Status as registered on ClinicalTrials.gov. Each trial is counted once.
Which lead sponsors run the most Sturge-Weber Syndrome trials? (1)
Shown in this order: most trials first. Lead sponsors the registry classes as industry, NIH, US federal, other government or network. A hospital or university the registry files as government can appear here. Sponsors it classes as academic or other are shown on the full page, because that class cannot separate an institution from a named investigator.
| Sponsor | Trials |
|---|---|
| Qlaris Bio, Inc. | 2 |
Which drugs are being tested for Sturge-Weber Syndrome? (4)
Shown in this order: most trials first. One row per drug, matched to a single molecule under all its names, ranked by number of trials.
| Drug | Trials |
|---|---|
| Cannabidiol | 2 |
| Timolol hemihydrate | 1 |
| EVEROLIMUS | 1 |
| Sirolimus | 1 |
Interventions as named in the registry (5)
Shown in this order: most trials first.
| Drug | Trials |
|---|---|
| QLS-101 ophthalmic solution, 2.0 % | 1 |
| QLS-101ophthalmic solution 2% | 1 |
| Preservative free artificial tear gel. | 1 |
| Haemoblock | 1 |
| QLS-101ophthalmic solution 1% | 1 |
These are the names sponsors entered on ClinicalTrials.gov that we have not matched to a single molecule. Some are drugs under a brand or code name; others are procedures, doses or arm labels.
Which serious adverse events do Sturge-Weber Syndrome trials report? (5)
Shown in this order: most subjects affected first. Subjects affected summed across trials, a cross-trial signal, not a rate.
| Adverse event | Subjects affected | Trials |
|---|---|---|
| Headache | 2 | 1 |
| Anemia | 1 | 1 |
| Facial Skin Infection | 1 | 1 |
| Left Eye Vertical Nystagmus | 1 | 1 |
| Pneumonia | 1 | 1 |
Which publications cover Sturge-Weber Syndrome? (8)
Shown in this order: major-topic papers first, then newest, then most linked to trials.
| Publication | Journal | Year | Major topic |
|---|---|---|---|
| Optical Coherence Tomography Visualization of a Port-Wine Stain in a Patient With Sturge-Weber Syndrome. | Dermatologic surgery : official publication for American Society for Dermatologic Surgery [et al.] | 2017 | Yes |
| Sturge-Weber syndrome with late onset hemiplegic migraine-like attacks and progressive unilateral cerebral atrophy. | Cephalalgia : an international journal of headache | 2014 | Yes |
| [Sturge-Weber syndrome]. | Presse medicale (Paris, France : 1983) | 2010 | Yes |
| A pilot study of the modified Atkins diet for Sturge-Weber syndrome. | Epilepsy research | 2010 | Yes |
| Surgical and laser treatment of Sturge-Weber syndrome. | Aesthetic plastic surgery | 2009 | Yes |
Showing 5 of 8 publications.
Prevalence (6)
Shown in this order: jurisdiction, then disease name. Orphanet observation for the mapped ORPHA concept; the mapping relation column says whether that concept is exactly this condition or broader or narrower.
| Orphanet disease | Type | Class | Geography | Jurisdiction | Mapping relation |
|---|---|---|---|---|---|
| Sturge-Weber syndrome | Prevalence at birth | 1-9 / 100 000 | Europe | Not stated | Unspecified |
| Sturge-Weber syndrome | Prevalence at birth | 1-9 / 100 000 | Europe | Not stated | Exact |
| Sturge-Weber syndrome | Prevalence at birth | 1-9 / 100 000 | Europe | Not stated | Exact |
| Sturge-Weber syndrome | Point prevalence | 1-9 / 100 000 | Europe | Not stated | Exact |
| Sturge-Weber syndrome | Point prevalence | 1-9 / 100 000 | Europe | Not stated | Exact |
Showing 5 of 6 prevalence observations.
Rare-disease identity (2)
Shown in this order: exact, broader, narrower, other.
| Orphanet disease | ORPHA code | Relation | Source |
|---|---|---|---|
| Sturge-Weber syndrome | 3205 | Exact | Orphadata Science knowledge files, Product 1 |
| Sturge-Weber syndrome | 3205 | Exact | Orphanet Rare Disease Ontology (ORDO) |
Not on this page
Not measured: delivery record.
Checked, with nothing recorded for this condition: sub-conditions in mesh.