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Clinical trial

FLOWER: Following Longitudinal Outcomes With Epidemiology for Rare Diseases

NCT06539169 is registered in ClinicalTrials.gov with xCures as lead sponsor.

NCT NCT06539169
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Registry record

As filed in ClinicalTrials.gov.

Title
FLOWER: Following Longitudinal Outcomes With Epidemiology for Rare Diseases
Lead sponsor
xCures
Phase
Observational
Overall status
Recruiting
Start date
June 10, 2024
Completion date
June 10, 2026
Enrollment
1,000 (estimated)
Sites
1

Conditions

As the registry lists them; a condition with its own page is linked.

alpha-thalassemia, amyloidosis, amyotrophic lateral sclerosis, beta-thalassemia, creutzfeld-jakob disease, cystic fibrosis, duchenne muscular dystrophy, early-onset alzheimer disease, ehlers-danlos syndrome, gaucher disease, gm1 gangliosidosis, huntington disease, myasthenia gravis, pompe disease, rare diseases, sickle cell disease, transthyretin amyloid cardiomyopathy